Aware...

I think I was always aware... he didn't react like other children to stimuli... he didn't laugh and smile as much as other babies, nor was he as intent on making eye contact, that's not to say that he never did, just not as much...

I hovered between aware and accepting during his second year of life - thing like when he showed little interest in his first birthday party and his second Christmas... he was happy to play by himself - lining up his cars, his crayons, even the soup cans from the bottom of the pantry.  I kept waiting for him to speak rather than babble- for his efforts and gestures to have meaning - as his mom, I usually knew what he wanted intuitively, but he couldn't communicate with others - he rarely pointed or acknowledged people and things...

Except his obsessions - he'd cry if we turned left to come home instead of turning right to go to our local Publix grocery store - and if we went to the grocery store, we had to follow the same pattern every time - get a cart and make a bee line straight for his free cookie from the bakery - then a trip around the outside of the store - produce, seafood, meat, dairy and finally up and down the aisles until we checked out...  He knew what the golden arches meant - his favorite food - french fries... and again, if we went to our local Walmart, he'd have a knock down fit if we didn't go to the Micky D's inside the entrance before shopping...

He'd swing on the swing for hours if we let him, take the same path up the stairs and down the slide almost step for step...

I finally had the courage to say something at his 18 month well baby check up... we talked about his obsessions, his needs and some of his external behaviors, along with the fact that he wasn't using any language - it was time to start intervention...

I was moving beyond aware into acceptance - I truly knew by 18 months that my son was special - and had special needs - I was on the brink of being able to say it - but the social services intake worker who screened him for barely half an hour saw that he was a smart kid and missed something - but did give us access to Speech Therapy...

So, for several months we had twice weekly play/speech therapy... but it wasn't clicking - speech therapy alone wasn't going to help him reach his potential or even his basic goals... we were seeing more - more needs, more stimming, less acceptance of new and different things - especially food...

As he turned two, I had read so much about developmental delays, sensory issues, language and more that the word that I had been thinking about in the back of my mind since he was 15 months old was solidified.  Just a scant few weeks later, we had seen a psychologist who confirmed what I was already aware of... it was Autism.

The next challenge was making others aware - his speech therapist was shocked by the diagnosis... it took several weeks to convince Social Services he needed more therapies... I also became aware of what I should have been offered six months before that might have helped me bring the awareness out more quickly...

Once everyone was aware, things changed rapidly - his stimming decreased, his language increased, his ability to share and communicate increased... he now talks about having friends, makes eye contact and even says hello, asks for his cookie and thanks the baker at Publix for it... he's reading and counting at grade level and he's learning to turn his special skills into assets, for which I am grateful...

I've written many times about Autism and how it affects our world - you can check out the Autism Awareness tab above for more stories - mine, blog friends, experts and more - so that you can be Aware too!

I wrote this post because of the promot at and am linking it up to:

Comments (20)

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For all the problems that most parents have with their children having to realize,accept and cope with the realization that your child is different must be a great burden but also double the joy when even tiny new steps and accomplishements are achieved. Thank you for your post, and thank God he has you to love him.
It is hard to realize a child has special needs but it is great you were able to catch it so early. I agree you are doing a wonderful job as a parent and the little milestones mean a lot.
I am glad that he is getting the help he needs and is improving because of it!
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I think it's so important to spread awareness about autism, and your post may help someone who isn't quite sure how to handle it. While psychologists and social workers are great at their job in most cases, they're not with your child every single day. They don't see what you see. It's important for parents to speak up if they feel something was missed.
Awareness can make a huge difference! I work with special education preschool kids and without great parents like you who are so aware, I wouldn't be able to do my job nearly as well!
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I can see how the awareness would be gradual, and how wonderful that you're so tuned in that you noticed so many signs and then asked about it.
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Awareness is so important! My daughter, although is not autistic, suffers from many developmental delays. Speech, physical and more. She is a bright and happy girl. But she was late starting things. I tried not to compare her with her brother. When I was feeling bothered by how slow she was doing developmental things, or babbling, laughing, etc I was told that every child goes that their own rate and to just give her time. Well when she turned 2 and could only say THREE words, I knew something was seriously wrong. She couldn't do a fraction of what her brothers were doing at this age. I pushed and pushed and finally got someone to agree that she was delayed and needed some help. It's been a long road. I wish I could have gotten someone else to be aware a lot sooner to have gotten help sooner. She is doing much better than she was but it has been a very long year and a half. And we stll have a long ways to go.

Being aware is key to catching issues early enough that they can be given the resources needed to make the best of it.
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Wow! Good for your for doing your research and fortunately your therapist that spoke up too. I know I shouldn't be, but the breaks in our system just surprise me still.
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I think as parents we have to be the ones to push the issue. Its great you did research and knew that what they offered wasn't enough. I have been fighting my son's school to get him in speech therapy and all they said was he is only 4 and he will out grow it. I am still fighting them because I know the words aren't getting better
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1 reply · active 636 weeks ago
Hang in there! Have you tried talking to your pediatrician about it? If your child cannot be easily understood by adults he doesn't regularly interact with then you might be able to get a diagnosis/prescription that you can take to the school board or that might be covered by insurance and you can get private intervention!
Thank you for this very personal and poignant story..,.good luck and keep hope in your heart and mind....
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Heather, this was such a powerful message on Autism Awareness, you used the prompt for something very affirmative and I loved it! I can tell how much heart you put into the writing of this story. I spent 19 years working at an agency that provided services for children and adults with autism and other issues, and I know what a difficult journey this is as a parent. It frustrates me that parents have to be the ones to push to get their child the attention, diagnosis, and services they need, but all I could think as I read this was how very blessed your son is to have a mom that was paying close attention to what was happening and made sure his needs were met. God knew exactly what he was doing when he gave this son to you... He gave him the very best! :-) Thank you so much for sharing with us at Two Shoes Tuesday, this was awesome!
So great that you were able to advocate for your son!
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It was such a relief to me to get a diagnosis that brought help for my child. Sounds like you felt the same!
It is so great that you were alerted to the issue and asked for help early. I didn't get to Early Intervention until my son was 3 months shy of turning 3 yo. With some of the therapists we only had 2-3 sessions, before he turned three in July and that meant no help until the beginning of the school year. We have been going to school since last fall and I am just so happy with results. The progress is amazing. Best of luck to you!
This was such a great post, so heartfelt. I'm dealing with my own awareness of my son's differences and it's hard. We don't have a diagnosis - not even sure if he'll end up with one. But reading your post is giving me strength. Thank you so much for sharing something so important.
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As a mom it is hard to just know there is something different and be unable to get the seek or confirmation thay is needed. Medical staff have swung back to the not labeling or addressing concerns from their swing to the far side of labeling everyone with a problem.

I am thankful you continued to push for the answers. Always trust your feelings about the health and safety of your children.
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I had the pleasure of teaching a student last year that had autism. It was my first time having an autistic student in my classroom, and it was a wonderful experience! I learned so much about autism and how to connect with autistic children. This student made me laugh and at times, privately, cry! He is so smart, but for reasons unknown, cannot express himself fully. I pray that researchers will one day find a way to enable these wonderful children with the ability to express themselves. May God bless you and your family!
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Jennifer Mae Hiles · 625 weeks ago

Autism month has really helped me be more aware. I new very little about it before last year's awareness month. I had just gotten into reading blogs, etc. and learned so much. Thanks for sharing with us.
Thanks so much for sharing your story! My sisters son was diagnosed with autism about age 3. It was about 6 years ago, but so much more awareness has come since back then. Thanks so much for sharing all these Autism posts!!!!

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