World Down Syndrome Day - 5 Myths Exposed

Today is World Down Syndrome Day and as a special needs mom, I know that sharing information and getting the facts out about any special needs condition is a tireless task.  Last year I was fortunate to have a great guest poster, Julie B. Cevallos - who was able to share that she is a Proud Mom of someone with Down Syndrome.  This year I want to help dispel some myths about Down Syndrome with the help of the National Down Syndrome Society

Here are 5 Myths that I've heard as a Special Needs Mom that I know are circulating but shouldn't be:

MYTH: Down syndrome is hereditary and runs in families.  
TRUTH: Down syndrome is hereditary in approximately 1% of all instances.  In the other 99% of cases Down syndrome is completely random and the only known factor that increases the risk is the age of the mother (over 35).  Translocation is the only type of Down syndrome known to have hereditary link.  Translocation accounts for 3 to 4% of all cases of Down syndrome.  Of those, one third (or 1% of all cases of Down syndrome) are hereditary.  
MYTH: Most children with Down syndrome are born to older parents.
TRUTH: Most children with Down syndrome are born to women younger than 35 years old simply because younger women have more children. However, the incidence of births of children with Down syndrome increases with the age of the mother.
MYTH: People with Down syndrome have severe cognitive delays.
TRUTH: Most people with Down syndrome have cognitive delays that are mild to moderate. Children with Down syndrome fully participate in public and private educational programs. Educators and researchers are still discovering the full educational potential of people with Down syndrome.
MYTH: Children with Down syndrome must be placed in segregated special education programs.
TRUTH: Children with Down syndrome have been included in regular academic classrooms in schools across the country. In some instances they are integrated into specific courses, while in other situations students are fully included in the regular classroom for all subjects. The current trend in education is for full inclusion in the social and educational life of the community. Increasingly, individuals with Down syndrome graduate from high school with regular diplomas, participate in post-secondary academic and college experiences and, in some cases, receive college degrees.
MYTH: Adults with Down syndrome are unable to form close interpersonal relationships leading to marriage.
TRUTH: People with Down syndrome have meaningful friendships, date, socialize, form ongoing relationships and marry.
For even more myths and truths check out http://www.ndss.org/Down-Syndrome/Myths-Truths/  and for inspiring stories from families who know all sides of Down Syndrome, please check out these wonderful messages of inspiration at My Great Story!  You can also find many wonderful resources at http://www.ndss.org

Disclaimer: Material content is taken directly from resources at http://www.ndss.org and is used in this blog post to promote World Down Syndrome Day.  All quoted material can be found at http://www.ndss.org/Down-Syndrome/Myths-Truths/ 

Comments (6)

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I didn't know that Down syndrome is hereditary and runs in families is a myth! I knew that women who have children at older ages have a greater risk, but I also (wrongly) assumed the the rest of the risks/chances were based on family history!
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It's so important to get this sort of info out there to families of special needs kids! I was totally wrong about some of this myself.
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I'm guilty of thinking the second myth - that more children with Down syndrome are born to older mothers, but it makes total sense that more would have younger mothers. Thanks for dispelling these myths!
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Thanks for the great post. I was not aware of these myths.
My parents had friends that had a daughter with Down Syndrome. She was born in a time when most children were institutionalized for having it. They brought her home and she actually outlived them.She was a delightful young woman that loved to sing, dance, and was so pure at heart you couldn't help by smile at her. She died a few years ago and she left a hole in a lot of hearts. It is sad that there are so many myths surrounding children with Down Syndrome.
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Thank you for sharing this! I always thought #2 was true, but what you say makes a lot of sense.

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